April 2009 Archives
Mara Youdelman, Staff Attorney at the National Health Law Program (NHeLP) and Director of the National Language Access Advocacy Project
As immigrant communities expand across the United States, many healthcare providers and patients have encountered communication barriers making it difficult for patients to receive proper care. We think Mara has a better grasp on this issue than just about anyone so we asked her to join us as a guest blogger to explain the need for improved access to language services.
We need to think of language services as important to healthcare as a stethoscope, you can't listen to someone's heart or lungs without one, how can you listen to a patient without being able to effectively communicate?
Many limited English proficient (LEP) individuals do not have access to competent interpreters and translated materials. When healthcare providers do not use interpreters, they often resort to pantomime or using untrained interpreters - including children or those without training in interpreting or medical terminology - to try to explain complicated diagnosis and treatment options. Without effective communication, serious harm can occur, such as the case of a young Florida man left quadriplegic after healthcare providers failed to diagnose a subdural hematoma. The clinicians thought they understood enough Spanish to accurately diagnose him. The result was a $71 million settlement.
A recent Washington Post article, "Speaking the Same Language" underscored the need for improved language services to ensure that LEP patients can effectively communicate with their healthcare providers. Some states - including the District of Columbia, Virginia but not Maryland - pay for interpreters for patients enrolled in Medicaid and the Children's Health Insurance Program. The recently enacted Children's Health Insurance Program Reauthorization Act provides additional funds to states to pay for language services for children in Medicaid and all CHIP enrollees. But Medicare and most private insurers do not pay for interpreters and often only translate materials, if at all, into Spanish.
The lack of language services is especially striking more than 40 years after the enactment of Title VI of the Civil Rights Act of 1964. This law prohibits anyone who accepts federal funding - virtually all health care providers - from discriminating based on national origin, which includes language. Guidance issued by the Department of Health and Human Services' Office for Civil Rights in 2003 outlines clear expectations for how healthcare providers should ensure language services.
The picture is not entirely bleak. The National Committee for Quality Assurance, the primary accrediting organization for health plans, and the Joint Commission both recently drafted standards to focus on language access and cultural competency. The National Coalition on Health Care Interpreter Certification is developing standards for the certification of interpreters to ensure the competency of those providing language services. (Full Disclosure: NHeLP is a subcontractor for the Joint Commission on its project and is a member of the National Coalition on Health Care Interpreter Certification.)
Too often, the question of whether to use an interpreter comes down to one of money rather than necessity. Just ask the Florida man and his doctors whether an interpreter would have been a cost-effective expenditure by the hospital and paramedics. We can do much better for our patients and healthcare providers. Let's hope that the current health reform discussions will address the need for improved access to language services.
For more information, see NHeLP's resource list on language access.
The views expressed by guest bloggers do not necessarily reflect the views of the Center for Children and Families.
Last week, work on health care reform began in earnest on Capitol Hill. Senators Kennedy and Baucus (the Chairman of the Senate Health Education and Labor Committee and the Chairman of the Senate Finance Committee, respectively) began the week by issuing a joint letter about their intent to move health care reform bills, by the end of the Spring, that are coordinated and closely aligned. This was followed the next day by the first of three roundtables hosted by the Senate Finance Committee to discuss health care reform.
And finally, just this week, the decision has been made by the Democratic leadership to leave budget reconciliation on the table as an optional vehicle to pass health care reform legislation. An important caveat in this decision is that Congress would only have until October 15 to pass a health care reform legislation before the reconciliation mechanism goes into effect. If Congress fails to pass health care reform legislation by October 15, the reconciliation process would be triggered; allowing the Senate to pass the legislation with a simple majority of 50 votes--if health care reform is paid for--rather than the 60 votes they would need under the normal legislative process. As Jonathan Cohn of the New Republic pointed out, this is a "real game-changer." He cautions that while it improves the chances of health reform being passed, it is still far from inevitable. However, it certainly puts pressure on Senators to come to the table and work hard to get a bill they like through before allowing a simple majority to pass it's version of health reform.
The stark contrast between this process and the 1993 health reform efforts is striking, to say the least. This time around, the conversations and the debate are happening largely in the halls of Congress instead of inside the White House. This seems to be an intentional strategy on the part of the President. While he and his Administration have set out a vision for what they'd like to see included in health care reform, they are relying on Congress to put meat on the bones and eventually get a bill to his desk.
Trying to tease apart the many complexities that this process will include is a daunting task. It is even tougher to envision what type of health reform bill might emerge. Just as you might need a program to fully enjoy a sports event, I thought a guide might be of use to those who are following this for America's children and families. Here's what CCF will be looking for...
An overused, but still valid staple of political commentators is "follow the money," but when it comes to health reform, another useful exercise is to follow the key staffers.
In a clear sign that Congress intends to make a full court press on health reform this year, Energy and Commerce Committee Chairman Henry Waxman has loaded up his bench with some all-stars in the health policy field. He already had an impressive team, including the highly-regarded Karen Nelson, Senior Health Specialist and Andy Schneider, Chief Health Counsel. Now, rumor has it that the Chairman of this committee critical to health reform is bringing back a number of his most seasoned staffers from over the years.
Jack Ebeler, a health care consultant who has served as a leading official on health policy in the Clinton Administration and more recently has served as director of the Alliance of Community Health Plans is heading back to Waxman's office to serve as the point-person on Waxman's health reform efforts;
Ruth Katz, a 30-year veteran of disability and long-term care issues who recently was serving as Dean of the School of Public Health and Health Services and a Professor at George Washington University Medical Center also is reportedly rejoining the team; and
Tim Westmoreland, a longtime aide who left to run the Medicaid program at the end of the Clinton era and now is a Professor of Law at Georgetown University, is ramping up his consulting role with the committee.
These are very experienced people and the fact that they are returning is a clear signal that this round of health reform efforts isn't being treated as a regular season game - we're heading into a Final Four of health reform efforts.
For more on signals of the seriousness with which health reform is being pursued, also check out Paul Krugman's latest blog posting.
While some are already celebrating the success of CHIP reauthorization in covering millions more kids, if you're reading this blog, you probably realize that the
number of questions raised by the new law rivals the number of children that
need coverage. The law provides states with enough information to move forward on many fronts, but as they do, questions will inevitably come up. For instance, how will CMS determine whether states meet the "5
of 8" policies required for the Medicaid
performance bonus?
In a recent State
Health Official letter, CMS announced an e-mail address where it will
accept many of these questions. The inbox at CMSOCHIPRAQuestions@cms.hhs.gov
is reportedly ready to receive inquiries regarding the reauthorization
act. While we're not sure just when
answers will be forthcoming, it's a good sign that CMS is open to questions
from those who will be putting CHIPRA to work.
State Representative Gary Elkins (R-TX) has been maligned for asking "What's Medicaid?" three hours into a hearing but at least he wasn't afraid to ask. Given that Medicaid is perhaps the least discussed and least understood of government health programs, it's time to give it the attention it deserves.
Medicaid is a cornerstone of the nation's health care infrastructure, accounting for about one in every six health care dollars spent in the U.S. This year, it will cover nearly 68 million children, parents, pregnant women, seniors, and people with disabilities. It covers almost two-thirds of all poor children, more than four out of ten births, and helps pay nursing home costs for almost two-thirds of all nursing home residents. Medicaid relieves other insurers and payers of the responsibility of covering a population whose health care needs can be complex and costly and who have little or no ability to purchase care that is not covered. In other words, Medicaid covers many of those that the private insurers don't want.
As we enter the health reform debate, it is crucial that policymakers understand the significance of Medicaid. Most reform plans, including those advanced by then Candidate Obama, Senator Baucus, and the Association of Health Insurance Plans, contemplate that Medicaid will be maintained and expanded in a reformed health care system. If the goals of health reform are to be met, Medicaid will not only need to be maintained, it must be strengthened and fully integrated with other core components of the health care system. Georgetown University Center for Children and Families recently issued a report highlighting the need for improvements in coverage, access, quality and efficiency in Medicaid. It's time to give Medicaid the attention and support it deserves.
Adam Searing, North Carolina Justice Center's Health Access Coalition
The Obama Administration is holding a series of Regional White House Forums to continue discussions about bringing down health care costs and expanding coverage for all Americans. We asked Adam Searing of North Carolina Justice Center's Health Access Coalition to post a guest blog from the event in Greensboro.
We went, we saw, then we had lunch. Two of us from the North Carolina Justice Center's Health Access Coalition (HAC) attended the Obama/Governor Perdue forum on health care at NC A&T University in Greensboro, North Carolina on March 31 (great lunch value - $5 all you can eat from salads to subs). The discussion before lunch was also all about value. Obama has made the decision that health care costs are the primary focus of his health effort. Sure, we need to get folks covered but we also have to get costs under control. I agree - we do need to get costs under control, as HAC's Adam Linker just detailed in a new report, but we can't lose sight of the imperative to guarantee affordable coverage to everyone.
When you talk about an issue long enough, every argument starts to sound the same, so much that even your own mother starts tuning you out. It's a bit like "American Idol" or "Britain's Got Talent" where all the auditions start to blend together.
We've been crooning on for years about the excessive and unnecessary amount of paperwork that some states impose on children and families enrolled in Medicaid or CHIP but it seemed as though we just couldn't get a callback. Enter stage left: Robert Nelb, a 23-year old student and health outreach volunteer with "Pointless Paperwork Is A Health Care Hurdle," an op-ed that is about as pitch-perfect as Susan Boyle's performance on "Britain's Got Talent." He really hit a high note with his call for "hassle-free health care".
Pointless paperwork not only puts up artificial barriers that deter families from getting and keeping eligible children enrolled in Medicaid and CHIP, but it's also costing taxpayers tens of billions of dollars a year. With so many rich data sources in today's world of technology, we should all be asking why do we have public coverage systems that require families to maneuver a maze of paperwork filled with bureaucratic barriers to get health care for their kids?
One of the key problems is a large percentage of uninsured kids had coverage but then lost it due to complicated paperwork at re-enrollment. Studies show as many as 40% of uninsured children who are eligible for Medicaid or CHIP were enrolled in the previous year. If we are serious about getting kids covered, we need to start with simplifying the process.
Even Simon Cowell would have been "gobsmacked" with the fresh perspective offered by Nelb. We're looking forward to Robert's encore performance - a Brooking's Institute paper on automatic enrollment.
When I got home from work a few weeks ago my husband handed me a flyer we got in the mail. It praised one of our Senators for her vote for the Children's Health Insurance Program Reauthorization Act, and exclaimed joyfully that 11 million parents just got the great news that their children now have health coverage.
Instead of thanking him for noticing something related to my work life and smoothly moving onto our six o'clock scramble routine, I launched into a lecture about how it is a great bill, but we're not even close to covering 11 million kids. The poor guy...he already has withstood close to three years of near-nightly discussions of CHIP allotment formulas, etc., and in that moment he must have realized that they weren't about to end just because President Obama signed the Children's Health Insurance bill into law on February 4, 2009.
Why start a blog? At the Georgetown University Center for Children and Families we debated that question for some time before deciding to jump into the blogosphere. With everything going on with the economy and a rapidly shifting dynamic in the health policy world, we thought a blog would provide a good place to meet to share ideas, find solutions, keep up with new developments, and, hopefully, find some "aha" moments along the way.
Given that every day more people are shaken loose from their jobs and their health insurance, now is a good time to start a conversation about how we can roll up our sleeves and work together to fix the health care system. With the implementation of the promising new CHIP reauthorization law, and the very real prospect that we might successfully take on health reform, there is much to learn, share, and discuss.
CCF Deputy Director Jocelyn Guyer and CCF Senior Fellow Tricia Brooks will help me get the blog rolling and we'll have lots of guest bloggers including other CCF staff and colleagues from around the country. We'll primarily focus on what children need from health reform and how to ensure the promise of CHIPRA becomes a reality for as many kids as possible. We'll also get into the nitty gritty of health policy at the state and federal levels.
The health care policy field is filled with engaged, bright, and talented people and I find it invigorating to get out and talk to them while traveling to various states to promote children's health coverage. I see this blog as a great place to tap into that energy without leaving my desk. While it won't provide frequent flier miles, it should prove to be a very worthwhile journey.
Given that every day more people are shaken loose from their jobs and their health insurance, now is a good time to start a conversation about how we can roll up our sleeves and work together to fix the health care system. With the implementation of the promising new CHIP reauthorization law, and the very real prospect that we might successfully take on health reform, there is much to learn, share, and discuss.
CCF Deputy Director Jocelyn Guyer and CCF Senior Fellow Tricia Brooks will help me get the blog rolling and we'll have lots of guest bloggers including other CCF staff and colleagues from around the country. We'll primarily focus on what children need from health reform and how to ensure the promise of CHIPRA becomes a reality for as many kids as possible. We'll also get into the nitty gritty of health policy at the state and federal levels.
The health care policy field is filled with engaged, bright, and talented people and I find it invigorating to get out and talk to them while traveling to various states to promote children's health coverage. I see this blog as a great place to tap into that energy without leaving my desk. While it won't provide frequent flier miles, it should prove to be a very worthwhile journey.
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